A special pleasure was the congratulations from CureCMD.
Cure CMD was founded in 2008 by three parents whose children were affected by Congenital Muscular Dystrophy. Through close collaboration with researchers, clinicians, families, and generous supporters, Cure CMD has achieved significant impact in its first decade as a nonprofit organization:
Launched two clinical trials
Completed a five year natural history study with the NIH to identify clinical trial endpoints
Grew the Congenital Muscle Disease International Registry (CMDIR) to more than 3,000 registrants worldwide
Co-Funded over $3 million in research grants